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Steve's Hour of Need
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Author:  wolfeman [ Tue Sep 23, 2014 11:16 pm ]
Post subject:  Steve's Hour of Need

That's a great story Steve; thanks for sharing...
Author:  SteveHopwood [ Tue Dec 16, 2014 12:27 am ]
Post subject:  Steve's Hour of Need

A post I just made in our HGB thread made me realise that I had not posted an update here for a while.

Chris is home and happy. Her recovery continues apace as her brain gradually recovers contact with the rest of her body. Steps now are tiny but incremental.

We have teams of two 'carers' who visit four times a day and take care of stuff that would be really hard/impossible for me to do alone. They move her from her hospital bed to her armchair and back again at regular intervals, and ensure that bed sores etc are not appearing. They alert me to potential problems and I can call for appropriate medical help. I thank any God going these days for our UK National Health Service. They have got thingies spectacularly right in Chris's case.

Tomorrow (16th Dec) is our 42nd wedding anniversary. It must be hard to imagine the love that cements two people together unless you have enjoyed that depth of relationship. I tell you guys, it is fantastic.

I did not truly know what I had until I faced losing it, as I did a few months ago. Chris nearly died three times. Somehow the medics pulled her through. I am crying as I write this. I never want to face that again, yet one day I will have to. Chris has MS, and there is no getting away from that. Sorry, but I cannot escape my darkest thoughts. I am not alone here, and my deepest sympathies are with the rest of you in the same situation.

For now, and until things take their turn for the worst, I still have my beloved Chris. :!!: :!!: :!!:

Thanks for all your support guys. You will never know what it meant until you are in the same boat and receive it yourselves. You just sensed my need and were there for me. :clap:

:xm:
Author:  SteveHopwood [ Tue Dec 16, 2014 12:48 am ]
Post subject:  Steve's Hour of Need

Ok, recovered my composure a bit and realised I didn't tell the laxative story I promised a couple of posts up.

Bear in mind that I do not do poo very well. Vomit, not really a problem even though I do not actually like it.

Poo? Forget it. I am on the horizon - of the next planet.

So, here is what happened.

Chris was released from the nursing home into my tender care, along with a humungous quantity of drugs and a list of what to dose and when.

One of thos drugs was Molaxole. Those of you with the merest inkling of a medical background are correct in your assumption about what what was to happen.

The drugs list included a sachet of Molaxole infused in water three times a day. The rest of you are beginning to guess and to giggle. Sadists.

Now, bear in mind that I was new to this stuff and terrified of getting it wrong - not totally fond of the idea of getting Chris's drug regime wrong and poisoning her.

So, I did what I was told.

Come 12.30 at night (had a couple of drinkies etc) and the call came: "Steve, I have done a bit of a poo."

No she hadn't. She had done a lot of a poo. Not the kind of volume that could be left for the carers in the morning. There was gallons of the stuff. I was wading through it up to my armpits. I never thought a human body could get rid of so much of it.

It took about an hour to clean her up. I had acquired our carers' immunity to poo by the time I had finished.

Yup. You guessed it. Molaxole is a laxative. The instructions on the sheet sent back from the home said to take it three times a dat. The label on the drug packet says up to three times a day, as required.

Hey ho. Everyone here likes a laugh at my expense, so enjoy.

:xm:
Author:  wolfeman [ Tue Dec 16, 2014 8:17 am ]
Post subject:  Steve's Hour of Need

Guess you shoulda read the manual first huh? :lol:

Seriously; I'm glad she's home and in your care. It makes all the difference. Have a great day :)
Author:  passgo [ Thu Dec 18, 2014 11:09 am ]
Post subject:  Steve's Hour of Need

Hi Steve & Chris,

I do hope you are enjoying being at home together. I have been so focused on HGI that I have not being paying attention to any other topics since I came back to trading and the forum a month or so ago. This morning in an idle moment I thought I would catch up and I read your posts with tears in my eyes. It was good to arrive at the positive news!

Then I struggled with what words to send you and I remembered a trip I made to USA a few years ago to follow in the steps of my great great great uncle who was the first American cowboy and he drove the first cattle from Texas to New York market in 1852. I met a relative in the town in Illinois where he settled and she gave me a copy of his business card which she had treasured for many years:

In his spirit I send you half of the winnings on the small live account I opened to trade HGI - hopefully there will be more to follow next year. I hope you will buy something very special to eat or drink this Christmas and I will be drinking a toast to you.

:party:
Author:  SteveHopwood [ Thu Dec 18, 2014 12:14 pm ]
Post subject:  Steve's Hour of Need

passgo » Thu Dec 18, 2014 11:09 am wrote:Hi Steve & Chris,

I do hope you are enjoying being at home together. I have been so focused on HGI that I have not being paying attention to any other topics since I came back to trading and the forum a month or so ago. This morning in an idle moment I thought I would catch up and I read your posts with tears in my eyes. It was good to arrive at the positive news!

Then I struggled with what words to send you and I remembered a trip I made to USA a few years ago to follow in the steps of my great great great uncle who was the first American cowboy and he drove the first cattle from Texas to New York market in 1852. I met a relative in the town in Illinois where he settled and she gave me a copy of his business card which she had treasured for many years:

In his spirit I send you half of the winnings on the small live account I opened to trade HGI - hopefully there will be more to follow next year. I hope you will buy something very special to eat or drink this Christmas and I will be drinking a toast to you.

:party:
Diana, I would have liked your great great great uncle. :clap:

I cried a lot of tears during those times that Chris was attached to more drips than I thought it possible for a human to support, and I could see no possibility of a happy outcome. I might have gone under were it not for the support of our son and my dearest friend, Tommaso.

Chris is thriving at home. Having her back is just plain awesome. The carers who do the stuff that would be too much for one guy are fantastic. They seem to enjoy coming here. Chris' only disability now is physical; her mind has recovered completely. She is warm and appreciative and always tries to send her carers away smiling - quite a contrast to some of the people they care for. :lol:

Thank you very much for your pressie. It will pay for a Christmas bottle of my favourite malt - Glenfiddich. In fact, if I look out for an offer, it will buy two. :party:

:xm:
Author:  Gandalf6 [ Mon Dec 22, 2014 10:04 pm ]
Post subject:  Steve's Hour of Need

Having only just joined this forum a couple of days ago and reading most of the threads, this is the one!
Steve you sound like the most kindest, loving, caring man around on any forum or website.
The efforts and knowledge that you share in such selflessness is unbelievable.
I wish you a Tremendously Merry Christmas with your wife and prey for a fabulous New Year. :party: :xm: :!!:
Author:  SteveHopwood [ Mon Dec 22, 2014 11:06 pm ]
Post subject:  Steve's Hour of Need

Gandalf6 » Mon Dec 22, 2014 10:04 pm wrote:Having only just joined this forum a couple of days ago and reading most of the threads, this is the one!
Steve you sound like the most kindest, loving, caring man around on any forum or website.
The efforts and knowledge that you share in such selflessness is unbelievable.
I wish you a Tremendously Merry Christmas with your wife and pray for a fabulous New Year. :party: :xm: :!!:
Thank you. All my Christmases came at once when Chris came home.
Steve you sound like the most kindest, loving, caring man around
Hehe. The lazy and dimwitted who have felt the lash of my written tongue would disagree. The kids I teach to play the piano know me as the pussycat lying on its back and awaiting a tummy tickle that I really am. They have the right of me. There are good and cogent reasons why I am a tad on the harsh side here - there is real money involved and an idiot and his cash are easily parted.

On a wider note folks, consider the implications of this. I can do one thing brilliantly (playing and teaching the piano - I am fantastic) and another thing that I can do moderately well (coding EA's for Forex trading).

The rest of life merely confuses me and always has done.

So, take a few seconds to consider the myriad of things that I do really badly. Not many of them matter in the grand scheme of thingies, but some do.

Take domestic chores, for example. I try, I really do. Somehow there is a dichotomy between what I want to achieve and what I actually achieve. I am rubbish.

It turns out that the Social Workers looking after Chris' long-term welfare recognised this and had built in enough domestic support into her care plan to ensure that I would not actually poison her. The carers were unaware of this, were doing what the agency told them to do, and the agency were getting away with the rock bottom basics.

This emerged when our chief Social Worker honcho contacted me to ask how long the carers were spending here. Long story, but basically the agency were screwing UK taxpayers big time, so Head Honcho Social Worker went on the warpath.

Suddenly the carers are spending ages more here than they did last week. Our kitchen and living room are transformed. Instead of thinking, "Erm, where did I last dump ....." and spending a long time to find it, then dumping it again in the first available bit of floor space (slight exaggeration for narrative purposes - not that bad I promise) everything has a place. All I have to do is use it, clean it after use and put it back.

Sometimes it even gets cleaned and put back for me. I have to be damn quick to do a domestic chore these days. :lol:

I am sooooooooooooooooooooooo grateful to our UK National Health Service. Again I say, when the get it right they are spectacular. Hard to see how much more right they could have got it in Chris' case.

So, we continue to progress. Chris becomes ever stronger and more supple. We have been able to cut down a lot on her pain killers and she has not taken a night time sedative for weeks.

We are doing well.

:xm:
Author:  SteveHopwood [ Mon Dec 22, 2014 11:35 pm ]
Post subject:  Steve's Hour of Need

Oh, and definitely pregnant. I desperately needed tomato sandwiches again tonight. :lol:

:xm:
Author:  J4D [ Wed Dec 24, 2014 2:33 pm ]
Post subject:  Steve's Hour of Need

Sometimes in Life we can wander down our life path not really expecting anything to heavy to happen......until it does..the change in reality can have quite a profound effect on us. It emphasises that whats really important to us are the people we love and its these loved ones that shape our life .....for the better.....the rest doesn't really mean anything...

Steve, Thats really great life is on the up for you and Chris and I wish you a very Merry Xmas and a very happy, positive and peaceful New year ..


Ja..
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